Organisational Structure

Organisational Structure

Glance is a transnational organisation, founded and led by the European Foundation for the Care of Newborn Infants (EFCNI). GLANCE consists of a worldwide network of parent- and patient organisations. It is supported by a Founding Committee, the Chair Committee, specially assigned Working Groups and other partners like scientific societies and global NGOs.

GLANCE was initiated under the umbrella of EFCNI and is coordinated by the following EFCNI founding members:

Silke Mader, Germany
Nicole Thiele, Germany
Aurelia Abenstein, Germany
Sarah Fügenschuh, Germany

Founding Committee

The Founding Committee met one time only in June/July 2019 for the first Chair Committee Meeting and acts as the first Chair Committee The following nineteen patient representatives were instrumental in the launch of the first GLANCE Chair Committee meeting June 30 – July 1, 2019 and are recognised as the Founding Committee of GLANCE:

Fabiana Bacchini, Canada
Oleksandra Balyasna, Ukraine
Selina Bentoom, Ghana
Ilein Bolaños, México
Mandy Daly, Ireland
Paula Guerra, Portugal
Gigi Khonyongwa-Fernandez, USA
Alison McNulty, Northern Ireland
Livia Nagy, Hungary
Nina Nikolova, Bulgaria
Ilknur Okay, Turkey
Kylie Pussell, Australia
Asta Radzevičienė, Lithuania
Eleni Vavouraki, Greece

Working Groups

Working Groups will guide all activities of GLANCE. They are set-up as an international and interdisciplinary, multi- stakeholder collaboration of patient representatives, healthcare professionals, researcher, industry representatives, organisational educators and other relevant stakeholders. The Working Groups develop and coordinate campaigns, projects and initiatives that aim to support the objectives of GLANCE.