Parent- and patient organisations

Parent- and patient organisations

International

International Council of Multiple Birth Organisations (ICOMBO)



http://icombo.org/

Email:
Monica Rankin, Chair
chair@icombo.org

Australia

Life’s Little Treasures Foundation (LLT)



1/203 Riversdale Road
Hawthorn, Vic 3122
Australia
Phone: +61 1300 697 736
Contact: contact_us@lifeslittletreasures.org.au
Website: www.lifeslittletreasures.org.au

Preterm Infants Parents’ Association/PIPA




PO Box 400, RBH Post Office
Queensland 4029
Australia
Phone: +61 1300 773 672
Contact: contactus@pipa.org.au
Facebook: PIPAssociation
Website: www.pipa.org.au

Belgium

Néonid


Contact: neonidparents@gmail.com
Facebook: Neonidbelgium
Phone: +32 493 98 63 98

Vlaamse Vereniging voor Ouders van Couveusekinderen


Tervuursevest 163
3000 Leuven Belgium
Phone: +32.16.22.44.43
Contact: contact@vvoc.be

Noah’s Ark

Brazil

Brazilian Parents of Preemies’ Association (ONG Prematuridade.com)


Porto Alegre, Brazil
Phone: +55 51 98118 2088
Contact: Denise Suguitani, Executive Director
denise@prematuridade.com
Website: www.prematuridade.com
Instagram: @prematuridadepontocom

Bulgaria

Our Premature Children Foundation (OPCF)


550-2 43, Mladost 1A
Sofia Bulgaria

Website: http://www.premature-bg.com/
Phone: 088 754 5446
Contact: office@premature-bg.com

Instagram: @ourprematurechildren
Facebook: @prematurebg

Canada

Canadian Premature Babies Foundation (CPBF) – Fondation pour les Bébés Prématurés Canadiens (FBPC)


CPBF-FBPC
4225B Dundas Street West
Etobicoke, ON, M8X 1Y3
Canada

Phone: 1-416-418-8916

Contact: Fabiana Bacchini, Executive Director
E-mail: fabiana@cpbf-fbpc.org
Website: www.cpbf-fbpc.org

Twitter: @Cdn_Prem_Babies
Instagram: @cdnprematurebabiesfoundation
Linkedin: @CanadianPrematureBabiesFoundation
Facebook:@CanadianPrematureBabiesFoundation

Life with a baby


1136 Centre Street
Suite 409 Thornhill, ON L4J 3M8
Phone: +1-416-833-3860
Contact: Claire Kerr-Zlobin
E-mail: info@hshf.org
Website: www.lifewithababy.com
Social Media:
https://www.facebook.com/LifeWithABaby
https://twitter.com/lifewithababy
http://ca.linkedin.com/in/lifewithababy

Costa Rica

FUNDAPREMA

Cyprus

Mora Thavmata (Miracle babies)


P.O. Box 22411
1521, Nicosia Cyprus
Phone: +357 99 547724
Contact: morathavmata@gmail.com
Facebook: Mora Thavmata

Finland

Mll Meilahden Yhdistys ry (Kevyt)


Contact: pj@kevyt.net

France

SOS Préma


14 rue de Longchamp
92 200 Neuilly-sur-Seine

Phone: +33 1.41.41.60.90
Contact: info@sosprema.com
Website: https://www.sosprema.com/page/173781-accueil

Facebook: @SOSPrema
Instagram: @sos_prema.officiel
LinkedIn: @SOSPrema
Twitter: @SOSPrema

Georgia

Save the Tiny life


Facebook Page: Save the Tiny life
Website: savethetinylife.org
Email: info@savethetinylife.org 

Ghana

African foundation for premature babies & neonatal care (AFPNC)


Instagram: @afpncofficial
Twitter: @afpncofficial 
LinkedIn: @afpncofficial 
YouTube: @afpncofficial 
Tiktok: @afpncofficial 
Facebook: @afpncvoice 

Greece

Ilitominon


Ioannou Gennadiou 16
Athens 11521 Greece
Phone: +30.210.72.9.99.92
Contact: through Facebook page

Hungary

Melletted a Helyem Egyesület



Csorsz u.41.,
1124-Budapest, Hungary

Contact Name: Lívia Nagy Bonnard
E-Mail: info@mellettedahelyem.hu
Website: https://www.mellettedahelyem.hu/

Facebook: @mellettedahelyem
Twitter: @AHelyem
Instagram: @mellettedahelyem
Youtube: Melletted a Helyem Egyesület

Irland

Irish Neonatal Health Alliance (INHA)


26 Oak Glen View
Southern Cross Bray CoWicklow Ireland
Email: info@inha.ie
Facebook: Irish Neonatal Health Alliance
Twitter: twitter.com/irishneonatal

Japan

Japanese organization for NICU families (JOIN)



206 Tenshooffice ochanomizu,
1-9-5 Kandaawajicho, Chiyodaku,
Tokyo, Japan

Tel: 81-3-3255-8286
Fax: 81-3-3255-8287
E-mail: contact@join.or.jp
Website: https://www.join.or.jp/
 

Republic of Kazakhstan

Foundation of Preterm Babies Assistance “Bekzat”



37/3 Ykylas Dukenuly St., Saryarka district, Nur-Sultan city, Republic of Kazakhstan
 
Phone: +7 701 322 74 62 
 
Contact: fondbekzat@mail.ru  

Latvia

ESMU KLĀT



E-mail: info@esmuklat.lv
Website: www.esmuklat.lv
Facebook: @biedriba.esmuklat
Instagram: @biedriba_esmu_klat

Lithuania

Lithuanian premature baby association “Neišnešiotukas”

Republic of North Macedonia

Lulka


Kole Nedelkovski 32/1-6
1000 Skopje, N. Macedonia

Phone: +389 78 377791

Website: www.lulka.org
Contact: contact@lulka.org , denis.lulka@gmail.com
Facebook: www.facebook.com/OrganizationLULKA

Malawi

Support Premats



Website: www.supportprematsinmalawi.org 
Email: office@supportprematsinmalawi.org
Cell: +265995730839
Address: Block B, SD Pharmacy Building, Area 23 Road, Chilinde/Kawale, Lilongwe, Malawi. 

Mexico

Con Amor Venceras


Mariano Escobeo 362-4
Col. Anzures
Mexico City
11590
Mexico
Phone: +521 5526539551
Website: www.conamorvenceras.org
Contact: conamorvenceras@gmail.com
Facebook: www.facebook.com/pages/Con-Amor-Venceras
Twitter: @conamorvenceras
Instagram: con_amor_venceras

Nacer temprano vivir en grande


Viveros de la Cascada no. 87,
Col. Viveros de la Loma
Tlalnepantla
Edo. de México
Mexico
Phone:  044.55.40.85.85.29
Contact: nacertemprano@gmail.com
Website

The Netherlands

Care4Neo


Marshallweg 13, unit 2
3068 JN  ROTTERDAM
Phone: +31.7.03.86.25.35
Contact: info@care4neo.nl

The TAPS Support Foundation



Aalbessenstraat 7
1326HS Almere
The Netherlands
Phone: +31 629 841 203
Contact: hello@tapssupport.com
www.stichtingtapssupport.com

Vereniging Nee-eten



PO Box 84144
2508 AC Den Haag Netherlands
Phone: +31 88 633 38 36
Contact: info@nee-eten.nl
Facebook: neeeten

New Zealand

The Neonatal Trust


PO Box 9366, Marion Square
Wellington 6141
New Zealand

Contact: info@neonataltrust.org.nz

Facebook: @neonataltrust
Instagram: @the_neonatal_trust
Twitter: @neonatalnz
LinkedIn: @The Neonatal Trust

Nigeria

EDEN Foundation



Kobi Ajayi, MPH, MBA
Founder/CEO,
Email: eden.helpline@gmail.com
WhatsApp only: +234 (80) 379-44-300
Website: www.edenfoundationg.com                                                             
Facebook |eden.helpline@gmail.com
WhatsApp only: +234 (80) 379-44-300
Website: www.edenfoundationg.com                                                             
Facebook | Instagram | LinkedIn | Twitter|eden.helpline@gmail.com
WhatsApp only: +234 (80) 379-44-300
Website: www.edenfoundationg.com                                                             
Facebook | Instagram | LinkedIn | Twitter|eden.helpline@gmail.com
WhatsApp only: +234 (80) 379-44-300
Website: www.edenfoundationg.com                                                             
Facebook | Instagram | LinkedIn | Twitter

Norway

Prematurforeningen


Gågata 5
2208 Kongsvinger Norway
Phone: +47.94.19.63.48
Contact: post@prematurforeningen.no

Poland

Fundacja Koalicja dla wcześniaka

Fundacja Kolor Serca


ul. Gajowa 76/37
85-087 Bydgoszcz
www.kolorserca.pl
fundacja@kolorserca.pl

Portugal

XXS – Associação Portuguesa de Apoio ao Bebé Prematuro


Lisboa
Portugal
Phone: +35 1 91 7837102
Contact: geral@xxs-prematuros.com

Romania

ARNIS – Romanian Association of Long Hospitalized Newborns


Str Aleea Privighetorilor, nr 86H, District 1
014031 Bukarest
Romania

Corina Croitoru
Phone: +40 (0)745 63 98 98
Contact: contact@arnis.ong, corina.croitoru@arnis.ong

Facebook: https://www.facebook.com/asociatiaARNIS/
Website: https://arnis.ong/

Asociatia Prematúrilor


Str. G. Puccini nr 8A et 4, cam 4, sect 2
Bukarest
Romania
Contact:  contact@asociatiaprematurilor.ro
Facebook: facebook.com/asociatiaprematurilor/ 

Russian Federation

The Charity Fund ‘Give Sunshine’


nab. Akademika Tupoleva 15
Moscow
Russian Federation
Phone: +7-(495)-926-95-68
Contact: info@sunlightfond.ru
Facebook: www.facebook.com/solncepodari/
VKontakte: vk.com/podari_solnechny_svet

Slovakia

Malíček


Krásnohorská 11
851 07 Bratislava
Slovakia

Phone: +421 948 129 985
Contact: info@malicek.sk

Website: https://www.malicek.sk/
Facebook: @nasmalicek
Instagram: @malicek.sk

South Africa

Preemie connect


Tasmin Bota
Preemie Connect
www.facebook.com/preemieconnect
Phone number: +27 64 508 5445
web address: https://preemieconnect.my.canva.site/
e-mail address: preemieconnectsa@gmail.com
Social Media Handles: @preemieconnect

Mahlogonolo Thobile Foundation


Mahlogonolo Thobile Foundation
Johannesburg
Gauteng Province 
South Africa
 
Contact person: Moshala Mothiba
                Mobile: +27 76 802 9912
                Email: hello@mahlogonolothobile.org
                Website: https://mahlogonolothobile.org
 
 Social Media:
                Instagram: @prembabies_moms
                Facebook: https://www.facebook.com/MahlogonoloThobileFoundation
                Twitter: https://twitter.com/MahlogonoloTho1

Spain

Asociación de Padres de Niños Prematuros (APREM)


Ribadavia 9, Bajo 4
28029 Madrid
Spain

Contact name: Aurora Pimentel
Phone: +34 657 667 086
E-Mail: aprem@aprem-e.org
Website: www.aprem-e.org

Twitter: @APREMprematuros
Facebook: Aprem Prematuros
Instagram: @_aprem_es
Youtube: Aprem Prematuros

Som Prematurs



Cr. Santa Maria, 69 baixos
08756 La Palma de Cervelló Barcelona
Spain

Contact name: Bet Farga
Phone: +34 699982055/685417457
E-Mail: info@somprematurs.cat
Website: www.somprematurs.cat

Twitter: @SomPrematurs
Facebook: Som Prematurs
Instagram: @somprematurs
Youtube: Som Prematurs

Prematura



Contact:  Monica Virchez
Mov. and Whatsapp: +34 651162006
E-mail: monvir@hotmail.com
Website: www.prematura.info
E-mail: prematura@prematura.info

Address:
Clara Campoamor 4, P2, 1-B
28703 San Sebastian de los Reyes
Madrid, Spain.

Switzerland

Frühchen Schweiz



Website: https://www.fruehchenschweiz.ch/
Phone: +41 31 515 65 25
Contact: info@fruehchenschweiz.ch
Facebook: @fruehchenschweiz
Instagram: @fruehchenschweiz

Uganda

Preterm Infants Parents Network Uganda (PIPNU)



Twitter: @PretermsUG

LEED Support Centre for Premature


Contact person: Kyalisima Louise
+256-777-149-922
Email address: leedpretermfoundation@gmail.com
Twitter: https://twitter.com/PrematureCentre
Handle: @PrematureCentre

Mama Tulia Ministries


Contact: Isabelle Kavira Furaha
Contact Number:+256751847461 / =256771222042
Web site: www.mamatulia.org
Facebook: mamatulia
Email address: mamatuliaug@gmail.com
X: mamatulia1

Ukraine

Early Birds (Ranni Ptashky) – Ukrainian Preemie Parent Organisation


29, Saksagansky street apt. 3
01033 Kyiv
Ukraine
Phone: +38 050 335 37 97
Contact: ranniptashky.go@gmail.com
Facebook: ranniptashky

United Kingdom (UK)

NEC UK Charity


Registered Charity number: 1181026
42 Long hill Rise, Annesley, Nottingham, NG17 9FG
Facebook: @NecrotisingEnterocolitisUK
Website: www.necuk.org.uk
Email: info@necuk.org.uk
Enquiries: + 44 07375813907

USA

Hand to Hold

NICU Parent Network


NICU Parent Network
1999 Main St Ste C-144 Madison, MS 39110
Phone: (601) 345-1772
Contact: connect@nicuparentnetwork.org

Hope for HIE


PO Box 250472
West Bloomfield Township
Michigan 48325
 
Family support: https://www.hopeforhie.org/parents/get-connected/
Clinicians & researchers: https://www.hopeforhie.org/clinciansandpartners/